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| This is my neice's son, Logan, who suffers from a rare genetic disorder called Sanfilippo Syndrome, a form of MPS. Today the National MPS society is trying to bring awareness to this awful disease by asking everyone to wear purple. If you read this post, please take a moment to go here MPS society to learn more about MPS and the devastating effects it has on it's victims and families. To learn more about my great nephew's story, please visit the family blog here. Thanks everyone! Maria |
Sunday, May 15, 2011
National MPS awareness day
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